BMT + 13

Haem: 74

White: 0.0

Plate: 14

Neut: 0.0

Weight: 63.1

So I woke this morning with very little mouth pain and thought today would be the day I saw the Neut number hit 0.1 - but unfortunately, that was not the case. But, overall feeling a lot better and it continued for the rest of the day.

I had a long shower this morning, sitting in the chair, just letting the water wash over me. Rubbing my hands across my head, all my little spikes of hair are coming out - so the darkness on my head has gone and in Anth's words I 'look a bit more shiny'.

The shower pretty much wiped me out - so as much as I have felt better all day, I have been really tired and out of breath. I thought my haem levels would have shown a much lower score than what they came back with.

So Dr's came around and saw next door and then disappeared. Thinking they would be back soon, I stayed awake - but 2 hours later I still hadn't seen them.

Daughters and Anth were here all day. As long as they are getting on, I'm happy to listen to the girls chatter and just talk about what they are up to, what is happening etc. However when they start having a go at each other .... I don't want the negative energy in here.

Social worker popped her head in to say hello and the dietitian came in to visit and did not have any objection to the NG tube coming out given I have now started clear fluids and I can now start eating - just move to all fluids and then onto soft food. Today the hospital provided chicken broth for lunch - again, I am not sure how you can stuff it up - but it was horrible. The dietitian even looked at it and commented how unappealing it looked!

So Dr's finally arrive at around 3.00- 4.00pm. The senior specialist was not with them today. The nurse agreed the tube should come out and spoke with the Dr's (I think it's the advanced trainee and registrar). Apparently the final sign off needed to be done by the specialist who I have since found out has said NO to removing it tonight. I AM VERY ANNOYED. Everyone is in agreement that it has served no purpose and should come out - but he's not even here today and I reckon it's an ego thing that he didn't say yes today! There was some talk here about it 'accidentally' falling out as much as I am prepared to challenge the decision I am not brave enough to go ahead and remove it. If something went wrong in the removal....

But tomorrow, I will be asking him to justify why he wouldn't say yes today.

So knowing I could now eat - the planning started on what might be possible. The Thermomix makes a great, simple, tasty Cauliflower soup so the girls and Anth headed off to make me the soup and returned about 6.30pm with it.

It was good. I can't say I felt hungry, but it was nice to have something that tasted 'real' and I got most of it down easily. So tomorrow there is an order for an avocado for lunch and hopefully move onto a tomato pasta tomorrow night! Hoping that everything stays down and I just start building some more energy and strength from here.

So engraftment hopefully in the next day or 2 - and then we wait again to see if there are any issues that arise with Graft vs Host Disease (GVHD). Let's hope not and the German cells settle happily into their new home..

And tomorrow, I certainly hope to be celebrating the removal of the NG tube.