Day 21: Good day, bad dinner!

Tuesday

WCC: 0.3

Hb: 91

Neut: 0.0

Platelets: 10

Weight: 61.1kg

Today was a good day.

Started at 5am and I couldn't get back to sleep, but probably the first day my eyes weren't sore in any way when I woke up. I will say (and maybe this is a sign I should take notice of) the hardest thing with my eyes now is looking and reading emails! The white screen with the text makes me strain to look at it and this is where the eyes get very tired very quickly.

Noticed hair on my legs is now falling out. No more shaving for a while. As of this morning, I was looking at the hair on my head, and no sign of movement, but by about 3.30pm, noticed a bit of a clump coming out near my left temple. Nowhere else on my head - so presume it will just get a bit worse over the coming days. Given my hair is so thick, I really don't want to face bald patches amongst clumps of hair so it starts looking too bad then the clippers can come and do their job.

D1 came and visited today and we had a really good day. We went for a walk around the hospital, outside in the 'garden' and then out the side door and around the outside of the hospital. Came back and she had cooked me Nachos mince/beans (just the way I like it) and we organised that for lunch (with half an avocado - which although I couldn't really taste, but knew it was good for me!) and then settled in to watch S6 episodes of Game of Thrones. I've seen it, but enjoying watching it with her. Lunch hit the spot, as much as it can at the moment with chemo mouth. Sweet chilli sauce seems to work a treat on everything at the moment. I even polished off the apple crumble/custard off the hospital menu for dessert and then had an ice block later.

Whilst watching, I got a bag of platelets - so it just happened in the background of watching!

D1 was still here, and then around 4.30pm had visit from neighbour, which was lovely - but cut short as I was joining a telephone chat with client and AS (lovely person looking after my work). It was nice to engage the brain a little again and just have a conversation about 'normal' everyday things again. That's not to say I don't chat to the nurses but I just mean a conversation that would have been part of my life before AML was diagnosed!

So dinner was delivered at 5.30pm - but it wasn't until 7.00pm that I wandered off to toast the roast beef and tomato sandwich! After such a good day - good lunch, good companions etc, it was back to reality to wonder how a simple sandwich can be so boring! I do have some lasagne in the fridge still - but will keep that for lunch tomorrow.

Mouth ulcers are something I am very concerned about and woke this morning with sore top palate and there is a little raised lump on that, and then later today noticed a small lump between teeth & gums on bottom left. Making sure I am still mouthwashing etc in the hope they don't get any worse.

So, overall, it was a very good day, went quickly and feeling pretty good.